Read Kameron Hurley’s post here. If you have any of the symptoms she describes, get medical attention.
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I was reading this site and came upon this account and am hoping to communicate with its author and anyone else newly diagnosed with type one diabetes by leaving this note. I also have type one diabetes and I speak around the country about legal issues relating to this disease at conferences called Taking Control of Your Diabetes. I am 44 and was diagnosed at 19.
Because I was fortunate to have been diagnosed at Mass. General Hospital in Boston by Dr. David Nathan I was trained properly and have avoided any meaningful complications from this disease for 25 years.
I was asked by Dr. Nathan to join a study called the Diabetes Control and Complications Trial (“DCCT”) and was randomly selected to follow a diabetes regimen that was then experimental but is now the standard means of treating type one diabetes as a result of the overwhelming success of tight control proven by the ten year DCCT study.
I wanted to tell you this because, as a result of work such as the DCCT, having diabetes is not nearly the same as it was when I was diagnosed 25 years ago – the progress has been astonishing and it is far easier to live with this disease than I could have imagined back then. Once you get over the initial emotional difficulty of finding yourself at a young age with a chronic illness, you will eventually learn that you can do anything you want without limitation and that there is virtually no reason to overly fear the consequences of this illness.
I also wanted you to know that there are at least two studies underway seeking to find a cure for type one diabetes and that both studies are seeking volunteers who are newly diagnosed. The first is being conducted by Dr. Nathan in Cambridge. Dr. Nathan is the head of the endocrinology department at Harvard Medical School. His team has successfully cured type one diabetes in mice. If I were newly diagnosed I would contact Dr. Nathan and try to find out if I could volunteer for this study because it sounds amazing to me. My personal experience is that my health and life expectancy have been dramatically improved as the result of the DCCT and my fortuitous diagnosis by Dr. Nathan 25 years ago.
The second study is being conducted out of Stanford University and I do not presently know the name of the doctor conducting it. A worker in my former law firm was recently diagnosed and I told him about the Stanford study (I did not know about the Harvard study at the time) and he is now involved with it so it would be simple for me to provide information about it if you like. I remember I was able to google “diabetes cure study” and find a lot of information.
IT IS CRITICAL TO NOTE THAT THE STUDIES NEED PEOPLE WHO ARE NEWLY DIAGNOSED. Time is critical because they are looking for persons who have been newly diagnosed and if you wait too long to contact them it may be too late to join these types of studies. You would be a perfect candidate because of your recent diagnosis and your obvious education and intelligence and I am certain they would enthusiastically welcome your interest and answer your questions about their goals, the risks, and the benefits involved.
My experience is that I am daily grateful for having been diagnosed by a leading expert in the treatment of diabetes; because I have represented and met so many persons with diabetes as an attorney and learned of the serious and horrifying consequences of poor care, I have become well aware of the difference between receiving the best care available as soon as possible.
I would be more than happy to discuss these things with you or anyone else who feels like contacting me about it.
Good luck!!
Kriss Halpern
310-458-9340
Kriss, this is a very nice comment, thank you. I will e-mail Kameron about it to make sure she sees it. I have good friends and one very special family member with Type 1 diabetes, so I know a bit about the disease, and I appreciate the important work you are doing.